[editor’s note: this was written yesterday, and just now being finished and posted. That accounts for all the “today”s and “such.]
Caia has had thrush since this past Friday or so, and I took her in to the ped that same day. She’s been on Nystatin ever since, plus she has a yeast rash AGAIN. (Which we think is how she got the thrush, to begin with. One usually accompanies the other in babies.) She gets these frequently, which I hate because not only is she miserable, but the medication is $35 a pop. None of her doctors have ever told me why she gets them so often, or what I can do to prevent them. Besides the obvious – change her diapers frequently, which of course I do.
She woke up Sunday morning, hoarse as a 70 year old smoker. It continued through today, and the only reason I hadn’t taken her back in yet was because when I called her doctor’s office on Monday, the nurse told me it was likely related to the thrush and Tuesday’s babysitter said that she sounded fine. (She didn’t, but she underestimated what she actually sounds like, I think.) So today, I decide to take her back in just in case.
She’s gained four ounces since last Friday, which is a good thing since she has an official diagnosis of “slow weight gain”. As if I needed anything else to worry about, right? She’s currently 17 lbs, 5 oz. The doctor listened to her lungs and heart, checked her mouth, ears, etc. Then she started feeling around her abdomen like normal. Concern ran across her face, and she did it again. She then tells me that she can feel Caia’s liver a lot “better” than usual, especially since it should be under the ribcage at her age, that it feels a bit enlarged, and that we should do liver function tests just in case. I tried not to panic as all the horrible possibilities ran through my head in about 2.5 seconds.
I took her to the Children’s Hospital of the King’s Daughters. They ran some blood tests, which she sat for beautifully. They called me back this afternoon and said they were normal, and that she would come back in for a follow up next week. The initial thought is that based on a few pieces of evidence, she is not digesting the Similac formula she’s always been on properly, and it’s affected her weight, to start with, and may be affecting her liver. She’s been switched to soy for two days, then will switch to Alimentum. I will be monitoring her in the meantime, and hoping for the best.
This is all just concerning, to say the least. Why couldn’t this have been noticed earlier – say, when she’s had the multiple yeast rashes, over and over and over again? I’m just infuriated, and frustrated for her. I just want my baby girl to be healthy and happy.